Support a Rare Snowflake

Every rare disease patient is like a snowflake, beautifully unique, one of a kind, and unlike anyone else in the world. TBCK syndrome is so rare that families often feel isolated, unseen, and alone in their journey. This summer at the TBCK Conference & Rare Disease Gala in Colorado, we're building something extraordinary together — an Avalanche of Care.
When you purchase a personalized snowflake, your name (or the name of someone you love) will be displayed on our conference wall and at our Black Ties for Rare Disease Gala. Your personalized message will join with hundreds of others in a stunning visual tribute to the rare disease community. Together, we aren't just snowflakes — we start an avalanche!
Every dollar helps us make sure no rare family feels alone.
Choose your snowflake tier and add your name, or honor someone special to grow an avalanche of care.
$100 — Gold Snowflake | Premier recognition + name on display + listed in the event program
$75 — Blue Snowflake | Name on display + listed in the event program
$50 — Pink Snowflake | Name on display
$25 — Teal Snowflake | Name on display
Every snowflake is rare. Every gift matters. Let's create an avalanche.